Showing posts with label elders. Show all posts
Showing posts with label elders. Show all posts

Monday, October 19, 2009

Looking for Grace-to Dignify a Life

The only way that I can get rid of my writer's block is to move forward and try to search for Grace. I need to figure out how it is that a person in America can live the last years of a life alone, "warehoused" in a nursing home, with no apparent history or connections, with no possessions and no family or lifelong friends. Here's the background on the little bit that I do know about Grace Lee.


Born November 14, 1947 - Died August 9, 2009


I first met Grace in July of 2007. I can't remember exactly what it was that drew me to her. Maybe it was simply because she was the first face I saw when I got off the elevator each time I visited a friend's parents at the Lakeshore Nursing home. Grace always positioned herself right outside the door of her room, directly across from the elevator. I always greeted her with a polite "hello" as I hurried by. She always responded with a slightly crooked smile and lonesome eyes.


The first time that I stopped and knelt down next to her wheelchair to talk face-to-face, tears streamed down her face, as she made sounds that only resembled words. When I said "goodbye" she hugged me like a long lost friend. After that I felt compelled to include her in my visits. Over time my friend's parents died but I had become so attached to Grace that I felt the need to continue my regular trips to the Lakeshore.


Grace could answer yes or no. Sentences that sometimes started out with real words ended up as gobbledegook by the end of the sentence. But somehow we got to know each other and Grace even learned to pronounce my name. I also learned that Grace loved to eat. Fresh blueberries and strawberries made her really happy.


Grace must have been a religious person because listening to Psalms that I read from the bible I found next to her bed always brought her to tears. And she always wanted more. When my daughter played Christmas music on the violin Grace tried to sing along. Grace did succeed in singing "Happy Birthday" with us when we lit the candles on her birthday cake. That was unusual, because we were told that it was a stroke that had totally stolen her ability to speak. I guess singing is different.


By bringing Grace to our house for Christmas day we were able to learn much more about her life. She was able to point to her favorite foods and answer questions so much that we determined that perhaps she had two sons and eight sisters. There was no way we could know for sure because the social worker had told us that Grace had no known next of kin and her roommate said that in the two years before we started visiting, no one had ever visited Grace.


Eventually Grace became too sick and too weak to take out of the nursing home. She stopped getting dressed or leaving her bed, she even turned down strawberries. Grace was 61 years old and was dying of cancer.


By July of 2009, I felt like Grace needed visitors more than ever, so I recruited a handful of people to stop in and see her when I couldn't make it.


On August 9, 2009 I got "the call." The social worker told me to come right away, he wasn't sure how long Grace would last.


When my daughter and I arrived, Grace reached out for us with a half-hearted smile. For the next 12 hours we would sing Taize chants to comfort her. We would moisten her mouth, and unsuccessfully try to get her to allow the nurses to give her drops of pain medication. We felt like we needed to be strong for Grace, but watching her disappear before our eyes was almost unbearable. Yet at the same time, the hours felt somehow sacred. And at one point it felt almost like a birth.


The hospice nurse would check vital signs and time the "apnias," the breathless times between breaths. As the breathless times grew longer and longer, the look on Grace's face became more blank, and her eyes began to dry up because she was no longer blinking. The nurse showed us how to blink her eyes for her to keep them moist. The breathless times continued to lengthen. And as he checked his stopwatch the nurse would give us updates.


"That one was three minutes," he whispered. "These things take time. Everyone does it differently."


As it got later and later, Grace's roommate became agitated and we felt that it would be best if we headed home for a few hours of sleep. Just as I was dozing off, the phone rang. It was the hospice nurse calling to let us know that Grace had passed. I wondered why there wasn't someone, anyone, a son or a daughter, a sister or a brother who could take this heavy desolation away from me. I felt sad for Grace and perplexed by the fear that perhaps nursing homes are filled with "throw away" or "forgotten" people.


It was nearly impossible to find a way to give Grace an appropriate send off. The public gaurdian would not answer my calls and at first no one seemed to know where her body was taken. After locating the funeral home where Grace had been taken, the funeral director informed me that a memorial service would cost more than 1 thousand dollars. I explained to him that I couldn't afford that much money but was concerned that the residents and nurse assistants who had become attached to Grace wouldn't have a way to say goodbye. He agreed to give us a two hour window in which to hold a memorial service, for free, if I would go buy her a dress.


Next thing I knew, I found myself wandering around Target looking for a pretty dress for Grace to wear for the rest of eternity. I couldn't see because tears were clouding up my contact lenses. I couldn't think because I somehow felt guilty.


I wondered, "Who am I to grieve for Grace when there must have been so much more that I could have done for her."


I felt confused. "Do I buy pantyhose?" "Does she need shoes?" "What size bra and panties does she wear?"


This seemed surreal and somehow so wrong.


Somehow I managed to purchase a beautiful white sheath dress that looked like something Audrey Hepburn used to wear, simple yet elegant. Yes, I bought shoes and underwear too. When I dropped them off at the funeral home, the director warned me not to expect anyone to come to pay last respects.


My friend Paul and I put together the readings, had the time and date posted at the Lakeshore nursing home, and when the day of the funeral came, we were pleasantly surprised to find a dozen people attending.


Grace looked terrific! They had fixed her hair and make-up and, except for the fact that she was emaciated, she looked perfect and peaceful. Gone was the vacuous stare that had erased any hope of Grace dying romantically with a smile on her face gazing on a chorus of angels. In it's place was a stately, delicate, STRANGER.


We left Grace in that funeral home. The director told us that he had to wait for a place to open up for her in a cemetery. We would have to call back later to find out the plot number and location of her unmarked grave.


Recently as I rode my bike along the lake, I had a strange vision or feeling of Grace riding on the back like kids used to do before helmets and safety were such an issue. And she was riding no hands! Maybe a free spirit at last! Maybe my imagination. Who knows?


My daughter wants you to know that we miss you Grace, and we love you. Because we love you, we are determined to find out who you were and how you were connected.


I plan to visit Grace's last known address, the hospital, the police station, the nursing home, I'll search records and maybe, just maybe, there will be someone who will help me find Grace.


Tuesday, July 7, 2009

Extreme Kindness Virus Strikes Again

You've heard about "extreme sports" right? I like to participate in "extreme kindness" instead. In fact, about a year ago, I wrote about how contagious "extreme kindness" can become and how my neighborhood has been looking a lot better because of all the kind people who have been picking up litter and going that extra mile for each other.

The other day the Obama administration called for a day of action for health care. So I figured that would be the perfect opportunity to spread the kindness virus a bit. Guess what? It worked.

I posted an opportunity for just 5 people to join me in visiting elders in our local nursing home. There were already 4 of us who visit the nursing home regularly, and we had discovered that there are plenty of elders who love to have visitors on a regular basis. We had already made friends with Grace, Evelyn, Eileen, and many others and we enjoy birthdays, holidays, and ordinary days with them.

Anyway, the plan was to show up at the nursing home and just talk to anyone who happens to be sitting in the hallway or sitting outside the rooms of the people whom we regularly visit. I made it clear that this was not going to be a one-day activity where a group of volunteers shows up to play bingo so that we could feel good about ourselves.

The idea was to make a real connection as a friend with one or two people and then let them know that each of us would be back to visit. It worked beautifully! All 9 of us connected.

Afterwards, all the volunteers told me that they had a lot of fun learning about the lives of their new "friends" and also that for sure they would visit regularly.

That was about a week ago. Yesterday, my daughter and I showed up with a pizza for Evelyn's birthday. Evelyn told us that one of the new volunteers had already stopped by with non alcoholic champagne to celebrate and that she had been waiting for the pizza to go along with it.

Another one of the new volunteers emailed me to let me know that she was on her way to sit with Grace, who has been living there for more than 2 years with no known friends or family.

So now 9 of us have caught the "virus." But instead of making us sick like real viruses, we have all discovered, one by one, that this "kindness virus" actually brings us joy.

We experience joy, because we realize that "others" who may need us, actually have much to offer us, and that we have much to offer them, the gift of our presence.

As I grieve over last week's death of Marjory, who I had been visiting for two years. I celebrate her gifts to me. At 87 years old she played piano for me almost every week. She played hymns from memory while she talked at the same time. She played Christmas songs even in the summer. We didn't care. She constantly reminded me to "love in many ways." And best of all, even up until the end she recited the Beatitudes from memory.

So as we pass the virus on one person at a time, I pass my gift from Marjory to you.

Blessed are the poor in spirit: for theirs is the kingdom of heaven.
Blessed are the meek: for they shall possess the land.
Blessed are they who mourn: for they shall be comforted.
Blessed are they that hunger and thirst after justice: for they shall have their fill.
Blessed are the merciful: for they shall obtain mercy.
Blessed are the clean of heart: for they shall see God.
Blessed are the peacemakers: for they shall be called the children of God.
Blessed are they that suffer persecution for justice' sake, for theirs is the kingdom of heaven.

Pretty soon if the "Extreme Kindness Virus" keeps spreading, it won't be "extreme" any more at all, it will just be "normal life."

Thursday, May 22, 2008

Love Matters

Have you ever dreaded an upcoming visit to your parent or grandparent who lives in a nursing home? I usually push through any resistance that might come up and go anyway. Making genuine contact with the residents, helps me to get used to the smell, the medication carts, and the boredom on the faces of staff and residents alike. 


Visiting my friend with Alzheimer's can be difficult but it always turns out to be interesting. I'm never sure where we will go together or if I will even be able to make contact. When I do, I celebrate. 


My friend was the last doctor in New York City to make house calls on a regular basis. His philosophy always was to give his best to his patients even if that meant leaving home in the middle of the night. My friend is genteel, kind, and concerned about others, even in the midst of his confusion. He has a vast history behind him that most of his caregivers in the nursing home are unaware of. That makes me sad. 


When some of them talk to him like he's 2 years old or when they announce out loud "It's time to change your diaper;" they are robbing him of his dignity.  Don't they realize that?


Friends say to me, "when I get old, just shoot me." No one wants to get old and become irrelevant. But you know what, people don't have to become irrelevant when they get old.


People like Deb (art therapist) and Houston (filmmaker) are participating in the movement to revolutionize the way we treat elders.  Both are way too young to be worrying about what will happen to them when they get old. Both are incredibly energetic, positive and both have already heard about Eden Alternative (a better way of dealing with the needs of older people). They get it! What a breath of fresh air!  


Houston and Deb spent the afternoon with me and several other volunteers, teaching us how we can participate in their new project. They create short video biographies of elders who live in a Chicago suburban nursing home, the Lieberman Center, which is in the process of changing to a more resident centered model. They create these documentaries specifically for the nursing home staff members. The idea is, if you know about a person's rich history, her cares, and her interests, you are more likely to treat her with the dignity that she deserves.


What if people who need care in their old age didn't lose the right to make choices about how to spend their days? What if they were surrounded by children, animals, families, and gardens? What if the choices came from the elders themselves rather than doctors, nurses, and their children? What if they were respected for the wisdom only gained by a rich and full lifetime? 


There are lots of ways to change the way we Americans treat our elders. You can find out more about the Eden Alternative in Dr.William Thomas' book, What are Old People For: How Elders will Save the World. 


You can also start visiting elders in your community as we do through Senior Connections and similar organizations in the Chicago area. For sure you'll make a new friend and maybe even discover a new talent. 


My friend, Marjory (pictured above) is now around 90 years old. Marjory is a published poet and natural born musician. We get together on Sunday mornings at her house, frequently she teaches me a new song. I try to sing while she plays magnificently, completely from memory. I can't think of anyplace I'd rather be at that moment! 


"In long-term care, love matters. And the heart of the problem is, institutions can't love. When we rethink our mass institutionalization of elders, when we do these things, we're not just making a better life for the elderly, we're making life better for everybody in every part of society."  Dr. Thomas